Showing posts with label CP. Show all posts
Showing posts with label CP. Show all posts

Wednesday, 15 July 2015

Happy Endings in Children's Books

Happy Endings used to be vital in children's books. 

Not so with the recent trend for 'terminal teens' as seen in titles such as Jenny Downham's Before I die, John Green's The Fault in Our Stars and most recently in Sarah Benwell's The Last Leaves Falling


Perhaps these books reflect a post-modern rejection of moral tales and a willingness to tackle subjects specifically excluded in earlier guides for writers. They certainly tap into strong emotional events and enquiries about what lies beyond. Mainly, I think, the writers encourage us to live honest lives knowing that injury or disease can strike people of all ages without warning.

As a doctor, I'm glad that chronic disease in childhood, learning needs [Sarah Hammond's The Night Sky in my Head] are represented implying a more inclusive society. Since it's my blog, I can mention my own title: Speak to Me: Mute, witty and dangerous, which seeks to explore the teenage experience of advanced cerebral palsy.

All these titles challenge the overriding perception of a fit society in which 'fitness' is equated to both 'sexually attractive' and 'deserving'. The experience of people outside the presumed majority urgently needs to be explored in an age of hate crime of outsiders: those with disability, different gender, orientation or race. 

Despite advances in treatment, living with chronic illness is an experience of a minority of young people, their friends and their families. Arthritis, Down's Syndrome, autism, hemiplegia, cystic fibrosis, diabetes, heart disease all deserve to be represented here. 

What young people seek is not pity or charity but a recognition that their lives are as eventful and precious as any of the celebrities of whom we hear so much.

Thursday, 11 June 2015

The secret of Wicked's success

The Musical 'Wicked' is a massive transatlantic success. 

What's the secret of Wicked's success?
1. Wicked champions the outsider, Elphaba is picked on for her colour and refusal to conform. We see many redeeming qualities in Elphaba: she sticks up for her teacher when he loses his voice and he falls into disrepute because he's not human. Opening scenes often feature arrival at school or college but Wicked pulls it off with humour, poking fun at the apparently sincere good witch, Glinda. But later on, the wicked witch Elphaba releases flying monkeys which cause havoc.

2. Wicked has style: strong female leads, an emerald and black colour scheme, brilliant lighting and stage effects  clocks to rival Harry Potter and Philip Pullman's Dark Materials and a cross between Victorian steampunk and 1930's American costumes. There are enjoyable touches of irony and parody. The Wizard sings a song in 1920's style reminiscent of King Herod's song in Jesus Christ Superstar 'Try it and See'.

3. It even begins with a disabled character, NessaRose whose relationship with her sister Elphaba promises an emotionally intelligent sub-plot


For all its style and popularity, the plot chunters off into nowhere land with arrests, escapes, re-arrests. The most glaring travesty of Elphaba's feisty nature comes in a stick fight with Glinda over Fiyero, the self-confessed shallow male lead.

Sadly Tessa Rose is portrayed as a mistake resulting from her parents' desire to avoid having a second daughter like Elphaba. "She's my fault," says Elphaba. The disabled sister and daughter is a millstone for all to carry. [as in Sleepovers by Jacqueline Wilson] Thus reinforcing widespread perceptions.

In one powerful scene, Tessa is cured by Elphaba's spell and stands for the first time. It must be hard for anyone in a wheelchair to witness this escapist denial of the meaning of chronic illness which harks back to sanitised fairy tales. 

Tessa Rose's fate is sealed off-stage when she is later crushed by a falling windmill and we are left to imagine that her recovery may have been temporary so she was unable to get out of the way in a sudden malevolently stirred-up storm.

The victory of style over contemporary resonance is complete.

Saturday, 1 February 2014

You can print paperbacks for free

You can print paperbacks for free

there must be a drawback, or is there?

Amazon's Create Space site enables you to transfer an e-book into a tree book free of charge. You don't have to be a computer wizard. The only costs are for an ISBN which is not essential and a book cover which you can make yourself

ISBN

I chose to buy an ISBN from Nielsen because I wanted to link my e-book to the paperback on Amazon. I also intend to publish several novels as e-books and in paperback, so I bought ten ISBN's. As you can see on the Nielsen site, the cost is £13.20 for each ISBN. 
I wanted my book to appear on Nielsen's Pub Web site so it can be found by book buyers and librarians anywhere in the world.

Book cover

If you have experience of using Photoshop you easily mock up a paperback cover. Create Space offer some tools to make the task easier, including advice on font size, spine width and content of blurb at the back. 

Research

I visited libraries and bookshops and studied the covers of books that had similar themes to mine. I tried to read the meaning of each cover. I opted for a face-on half portrait because it said: 'personal story of a young girl' [Lauren] and left space for the title.

I prefer drawings to photographs; they seem more personal.
I chose to distort my title using perspective like a yellow painted sign on the road; Lauren's van parks in a disabled bay outside school. I didn't want a wheelchair on the  cover because I thought it would put readers off. Lauren is a feisty young woman who happens to be on wheels. 
I made a collage and photographed it. The cut out letters against the tarmac give a striking adolescent feel to the cover.

The result was quite raw so I smartened it up and added a subtitle and author name using Create Space's editor. It took a number of tries to get the picture right but it wasn't technically difficult. Here's the finished result as it appears on Amazon:

I chose quotes from the text for the back cover and used the same design in the background. You can see how basic my drawing was using only 'Paint'. I wanted the drawing to look like as if it had been done by a teenager.

The heart is important. My book is a romance and I noticed that romances invariably have pink hearts on them. I chose to give my heart a rough, distressed look, the road to love isn't smooth.
You can read an extract from my book here.
In later blogs I'll tell you my experience of pricing, promotion and marketing.

Friday, 3 January 2014

Special Needs for communication

A Guardian article by Rhiannon Lucy Cosslett why special needs matter got me thinking about inclusion. Rhiannon's brother is severely autistic.  

She remembers a speech therapist saying: 'no point in teaching him to speak because he'd only talk rubbish.' Ignorant attitudes like this harm our young children and prevent them reaching their full potential. and he was mocked in school. Jamie Oliver tells a similar story of being labelled as having special needs.

Rhiannon's family had to fight hard to get training for her brother; not everyone is able to take social workers to court as her family did.

Mainstream schools could do more to discover the potential of young people who don't fit the normal pattern. We need 'special schools' but can't we link them closely with neighbouring schools to allow joint lessons interchange and enable people with special needs to take GCSE's.

In researching my novel Speak to Me I visited special schools in Nottingham and Bath. In one case, I discovered that no special needs pupils were enrolled in GCSE's even though the students included children with hemiplegia, cerebral palsy and autism which are often associated with islands of ability or even high intellectual abilities.

The Prince's Trust quotes research that reveals the effect of low expectations: young people with poorer GCSE results were often depressed and felt rejected, many turned to alcohol or drugs.

To find out more about inclusion in schools, contact

or read my book: 
now available on Kindle and in paperback.


Sunday, 1 December 2013

How sad and other mistaken assumptions

My aim as an animator is to make models of disabled characters to challenge the assumptions people have about disabled people. 

 If I put a female character in a wheelchair people ask, 

"Will she be wearing a bandage?"

No, she's not ill.  

"A girl in a wheelchair, how sad."  

No, it's not sad, it's everyday life for a lot of people.

I'm searching for the right materials and a suitable setting, experimenting with 2D and 3D images.  I'm attempting realism, meaning contemporary, everyday settings.  People say: 


"Doesn't a wheelchair have giant back wheels?" 

No, look around you, they don't.

More to follow, with moving images.

Monday, 28 October 2013

Why I wrote Speak to Me: mute witty and dangerous

In Speak to Me: mute witty and dangerous Lauren aged 14 starts school, only, she can't speak, she needs help to point at letters on a board.  

Lauren's nerves are on edge after overhearing comments as she comes in to the classroom. She wants to learn enough to get to university and also she's like to get to know the boys. Classmate Anthony learns how to help Lauren speak and after a series of misunderstandings Anthony gets called into the head's office with a serious charge that could affect his schooling forever.


I wrote Speak to Me while studying for an MA at Bath Spa University. I found few novels for teenagers explored the drama of life in a wheelchair.  It's a page-turning story that makes you think.  It is possible to be inside the head of someone who can't speak without help and there's plenty of drama on all sides.
Speak to me is available as an ebook on KIndle here:  Speak to Me and it will soon be released in paperback.

Thursday, 22 December 2011

Best Reads of 2011

Here's my Top Seven:
1. Andrew Taylor The Anatomy of Clouds  [Penguin, 2011]
2. Maxine Linnell Closer [Five Leaves 2011]
3. Nadine Gordimer, The Pickup. [Bloomsbury,2002]
4. John Grisham, Theodore Boone [Hodder, 2011]
5. Emma Henderson, Grace Williams Says it Loud. [Sceptre, 2010]
6. Margaret Attwood, The Edible Woman [Virago, 1980]
7. Judith Allnatt The Poet's Wife [Black Swan, 2011]

Andrew Taylor's historical crime novel is cleverly positioned in time and place, a totally absorbing read.
Maxine Linnell's tale follows Mel into the deeper secrets of family life.
Nadine Gordimer made me cry.  I'd been put off by her tangential style using abstract nouns but her characterisation is so precise she achieves both surprise and truth.
John Grisham is a good YA yarn with an annoying but engaging main character.
Emma Henderson bravely follows a mute character through the paternalistic 50's and 60's towards the present day.
Margaret Attwood made me laugh.  I had no idea her writing was so amusing until I listened to this audio book.
Judith Allnatt's tale of John Clare's wife is a great yarn in a credible setting.

Thursday, 1 December 2011

Grace Williams says it Loud

I'm searching for a Young Adult book that gives a central role to a character with severe cerebral palsy.  Emma Henderson's Grace Williams says it loud [Sceptre, March 2011] comes closer than any to a realist account of profound disability, read my review here:
http://www.amazon.com/review/R2U95R94JQ7Q6J
It has its moments of profound injustice which, I suppose matches the paternalistic times: 1950's and 60's institutions and it has a resourceful and enjoyable main character who holds the book together. Emma manages to avoid the well known dangers of disabled characters: undue pathos, early death, escape into fantasy, implausible cure, mind over matter or special powers. 
More to come: Sarah Hammond's The Night Sky in my Head which features a main character with learning needs is due for release next year by OUP.  And I'm told there are more titles in the offing in this challenging area.